When she went outside she noticed her skin was burning. She could not fathom what she was allergic to.

Savannah Fulkerson has a rare genetic condition that causes her skin to burn when exposed to the sun. Some would say she is allergic to sun or allergic to sunlight.

Around the time Savannah Fulkerson turned 4, she became unable to spend any length of time outdoors. “We’d be outside about 20 minutes or so … she’d say, ‘I burn!’” recalled Savannah’s mother Andrea Fulkerson. Fulkerson remembers Savannah in so much pain she had “uncontrollable screaming like she got hit by a car.”

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