Cancer is one of the worst things you can imagine especially if it happens to your children.
Shelby and Jonathan previously thought their daughter was suffering from allergies She was struggling to breathe and her doctor suspected asthma. But it would soon be clear that the situation was much worse.
She was scheduled to have surgery in a couple of days but never got around to it. Then one night she stopped breathing.
Shelby and Jonathan had to run and call an ambulance. It’s a parents worst nightmate. A while later they are rushing to hospital.
Then the doctors were able to confirm that she was actually suffering from something a lot worse than allergies. She had developed T-cell lymphoma cancer.
Sophie has then since spending months in hospital getting treatment. Even though doctors thought she was putting up a good fight the cancer spread.
She was unable to walk and talk and even eat at times due to the chemotherapy. Right now her weak fragile body is enduring the preparations to undergo a stem cell op.
Sophie’s mother, Shelby, keeps steady watch by her little girl’s side. Regularly there is such a great amount at the forefront of her thoughts that she neglects to deal with herself. The main thing that tallies is ensuring Sophies improvement
The parents have made a Facebook page to report Sophie’s battle against the sickness. They hope the family and friends of Sophia will check in to see how she is doing.. The page is called Sophie The Brave.
Be that as it may, it’s not simply family that takes after the page. Today there are more than 12,000 individuals following Sophie’s trip.
There is one specific post on the page that has been colossally valued. Different mothers with debilitated kids will probably identify with Shelby’s words. The post is about the medical attendants and other healing facility staff that deal with Sophie.
She wrote on Friday night:
After 9 days in the hospital, we were transferred back over to OCH rehab yesterday afternoon. Sophie was super pumped about getting a big bed this time to stretch out in instead of a crib. (We do put the rails up or sleep with her just FYI…she is just so much more comfy in the big bed.) yesterday was pretty uneventful. We got resettled at OCH, signed all the paperwork again, and then just watched movies and cuddled all afternoon.
Today in therapy, Sophie did really well! She sat up on the side of the bed with her therapist supporting her lower back and she held her head and shoulders up for 2 therapy sessions! Yay Punkin!! She also has been making a lot of sounds and is smiley and laughing a lot right now. Huge blessings for us to see after her feeling so crummy for so long.
We heard from Cook’s today and we are officially scheduled for our big ‘Transplant Conference Consultation’ on Thursday at 2:00 in Ft Worth. That sounds really scary and intimidating….because it is.
We will sit and talk out every detail of transplant. The type of chemo, how much radiation, possible procedures, pre-testing, insurance, the stem cells, precautions, risks, chances, infections, complications, etc. as you can imagine, we are pretty nervous about this big meeting. I’m a note taker and I suspect my hand will be real tired. We are SO thankful to be at this stage because there was a real chance of losing her 2 months ago but it’s still a very scary stage.
The plan is to continue all 3 of her therapies at OCH daily through Thursday morning. Then we will load up in transport and head to Cook’s around noon-ish I’m assuming.
Please keep praying-this is go time.
1. THANK YOU LORD for the healing you’ve already done in Sophie so far!!! And Cook’s starting the process of accepting us!!! Thank you for big progress in therapy and for that smile!
2. Pray for Sophie to keep her feeds down and gain as much weight and strength as possible in the next few weeks. Divine, miraculous strength!
3. Pray for the specific chord blood that will be used for Sophie. Pray that it’s absolutely perfect and grafts into her system-completely replacing any cancer or regenerating cancer! In Jesus’ name this will work 100% and save her life!
4. Pray for protection. Bathe my baby in protection from ANY infection, complication, or long term side effect.
5. Pray health and protection for all of her caregivers and family. We can’t be around her if we have any hint of sickness.
6. Pray for the 5 of us going to the transplant caregiver meeting—it will be a lot of overwhelming information.
Mom Shelby writes:
“I see you. I sit on this couch all day long and, I see you. You try so hard to be unnoticed by me and my child. I see your face drop a little when she sees you and cries. You try so many ways to ease her fears and win her over. I see you hesitate to stick her or pull bandaids off. You say ‘No owies’ and ‘I’m sorry’ more times in one day than most people say ‘thank you’..
I see all of those rubber bracelets on your arms and wrapped around your stethoscope, each one for a child that you’ve cared for and loved. I see you stroke her little bald head and tuck her covers around her tightly. I see you holding the crying mom that got bad news.I see you trying to chart on the computer while holding the baby whose mom can’t-or won’t be at the hospital with her.”
“You put aside what’s happening in your life for 12 hours straight to care for very sick and something’s dying children. You go into each room with a smile no matter what’s happening in there. You see Sophie’s name on the schedule and come to check on us even when she isn’t your patient. You call the doctor, blood bank, and pharmacy as many times as necessary to get my child what she needs in a timely manner. You check on me as often as you check on her. You sit and listen to me ramble for 10 minutes even though your phone is buzzing and your to do list is a mile long.” “I see you. We all see you. No amount of snack baskets or cards can fully express how appreciated you are. You are Jesus to us every single day. Our children wouldn’t get what they need without you. Moms like me wouldn’t feel sane or heard without you. You save our babies and we couldn’t do this without you.”